The Amber Trust and ISM to launch ground-breaking new music service for visually impaired children and young people with neurodegenerative disease.
On Monday 16 November, 2020, The Amber Trust, in partnership with the Incorporated Society of Musicians’ sister charity the ISM Trust, will launch With Music in Mind , a major new service which aims to transform music provision for visually impaired children and young people with neurodegenerative disease, and their families.
With Music in Mind provides parents, carers, teachers and therapists with freely available, specially designed resources and offers families weekly music lessons or family sessions from specially trained music practitioners. Family sessions will include activities to support engagement with music and to sustain other abilities for longer than would otherwise be the case, with a particular focus on language and communication. During this time when, families may be particularly isolated due to the pandemic, these sessions will be available online.
A recent research project undertaken by Professor Adam Ockelford at the University of Roehampton indicated that some children in a group with neurodegenerative disease are able to keep using words for months or even years longer if they are sung rather than spoken. And a love and enjoyment of music can persist to the very end.
Adam Ockelford, Trustee of Amber and Professor of Music at the University of Roehampton
‘Research by the University of Roehampton shows that music can play a unique and vital role in the lives of children with juvenile dementia, and I am delighted that, with the generous support of The Linbury Trust and the GC Gibson Charitable Trust, we are able to offer a new, targeted service for families who are affected across the UK.’
Deborah Annetts, Chief Executive of the ISM, of which the ISM Trust is a sister charity, said:
‘Creative subjects have never been more important to wellbeing for children but we recognise that barriers to inclusion remain. That is why we are proud to support initiatives for accessible music-making so even more young people can enjoy the rich benefits of participation in music. This new music service will not only provide a fantastic benefit to children with visual impairments and juvenile dementia, but will also help tackle family isolation at this difficult time.’
With Music in Mind will be launched on 16 November at 4pm with a webinar hosted by the ISM Trust. To attend, register online.